Tuesday, February 20, 2018

Resurrection D

As anyone who had read the blog in the last six weeks will know, I've been sick. A cold laid me flat and after I began to get over it, I was slammed by the worst fatigue I have had in, well, I can't remember.

Take note, please, although I've experienced some mild fatigue for the last two days I have not taken more than an hour nap and that was yesterday. I've been able to wash clothes and put away laundry, wash dishes, and I have a roast in the cooker for dinner. Yeah, I know!

Alas, no writing yet but I feel that by the end of the week I'll be able to get back into the novels. I think I'm learning patience. UGH! Whatever, I'm thankful to be almost free of that deadly exhaustion.

I do not say deadly lightly. I really was getting worried by this past Sunday. The cold was cleared up but I've been sleeping an average of 12 hrs a day. Usually 6-8 at night and then having to sleep anywhere from 4-6 hours in the daytime. It wasn't voluntary either. I had to lie down or I'd fall down and I fell asleep nearly instantly every time. I had people calling to see if I was all right because they knew something was wrong with me. So, this wasn't me being dramatic.

The good news is I think I found the cause. About a month ago, when I became so sick with the cold, I had run out of my vitamin D. I kept trying to remember to go get more but I either was too sick to go get it, couldn't remember to ask someone, or when I was out, didn't remember myself. So, I've been without vitamin D3 for about 6 weeks.

On Sunday I got depressed and desperate. I basically prayed and ask God to help me find out what was causing this problem. Because I absolutely knew it was abnormal. That evening, as I was taking my pills, something just told me to go to the store and get the vitamin D. I didn't waste time. I left in the middle of things, got it, and came back. I took 15,000 units Sunday night. Monday morning I took 15,000 unit. Yes, yes, yes, I know that is a lot. Trust me, I've been doing this a long time, over 10 years, in fact. I've been taking 10,000 units, over doctor protest, that long. I get regular bloodwork, at MY request, to monitor my blood levels of D. I have never been over 100 and toxic is 170.

Here's the thing. Several meds I take for RA actually prevent the absorption of D. In other words, any D I get, whether via sunshine, foods, or pills are blocked by those meds. When they first discovered that I had a deficiency, I had recently been diagnosed with RA and fibro. I was at a blood level of 25. The started me on 1000 units. No impact. They raised me to 2000 units. No impact. They raised me to 5000 units and got my blood up to 30.  I took that for a very long time. Until I changed doctors.

In the meantime, I did research, lots and lots of research. I read books on D and the medical studies on it and the relationship to autoimmune diseases. So, I know what I'm talking about. I had a hip problem and it developed into a leg problem and I could not walk some days without out a cane. I was in my 50's! My research revealed a connection to bone and muscle pain and D deficiency. I asked my new doc it I could take 10,000 units. She said yes. Hip and leg pain disappeared. No cane needed, thank you.

Now, back to today. As of today, the brain fog is slowly passing. Muscle pain and joint pain has decreased substantially. Remember the pain from the weekend? Go read the blog or Facebook. That pain is nearly gone. The damaged nerve in my hand is always in pain. For weeks it has been worse than when I ruptured the disk and nearly unbearable. Today... minimal pain that is bearable. I've even gone without the hand cover I wear constantly. But the major impact is that I'm not falling down with exhaustion and passing out as soon as I sit down.

For close to 5 years my doctors kept wanting me to reduce my D intake. I've refused, citing my bloodwork and the pills that are affecting absorption. Two years ago my RA doc finally conceded that I "tolerate high doses of D very well" and suggested I keep taking it. (smirk) Certainly. I never had any intention of doing differently.

I'm anxious to write now. I mean right NOW. I can actually feel my brain beginning to kick into gear. It is always astonishing. I can't believe I went 6 weeks and never made the connection. Of course, in that condition, you aren't thinking. Because I KNEW you see. I should have caught it earlier but I guess because I was so sick with the cold and not functioning well anyway that it just got by me. Please, if you hear me talking about that fatigue again, remind me!

And if you struggle with autoimmune diseases, chronic fatigue, or fibromyalgia please demand they check your D levels. If they're below 50 I'm telling you, you need more D. Do your research. Search Google Scholar because they have medical documentation of research and trials. Be very specific. For example, I research Vitamin D and medications that prevent absorption, Vitamin D and RA, D and Fibromyalgia, D and chronic fatigue. Research your disorder and Vitamin D. I think you'll be shocked. Also, you might look for a book called, The Miraculous Result of Extremely High Doses of Vitamin D This is not an endorsement of his use of extremely high doses of D. I DO NOT SUGGEST that you take high doses of D without blood work and monitoring but the data in this book is what you need. In an earlier version, he gives hundreds of links to clinical trials and articles on this topic. You don't have to have to book to research it yourself. It was just one of the triggers that got me started.

Now I will leave you. I have a school meeting that I will be able to stay awake for and then I have to get back home and with luck, I'll have my evening free to relax. We'll see how tomorrow goes. I'll be taking the 15,000 units at least thru the end of the week.  I think that the weekend might just be awesome. I don't think it will be as bad as the last one.


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